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Look Good...Feel Better Luzca Bien...Siéntase Mejor, Sociedad Americana del Cáncer 1599 Clifton Road NE Atlanta, GA 30329 (800) 395-LOOK or (800) 227-2345 202-331-1770 The Look Good…Feel Better program — developed for women in cancer treatment by the CTFA Foundation, a charitable organization established by the Cosmetic, Toiletry and Fragrance Association (CTRA). Some programs offered locally, search online.
Make Today Count Haga Valer el Día de Hoy St. John's Cancer Center 1235 East Cherokee Street Springfield, MO 65804 800-432-2273 http://www.missouristate.edu/nursing/community/Agency_folder/MakeTodayCount.htm Offering emotional support to people who are experiencing grief or loss. Make Today Count, Inc. is a nationwide support organization for all persons affected by cancer or other life-threatening illness; patients, families, health care professionals and interested persons.
Medicine Online Offers medical information and education in oncology and HIV/AIDS, hepatitis, Medline® literature searches, Daily Medical News, Cancer Forums discussion groups, and reports from medical meetings for health care professionals, patients, and other interested consumers.
National Bone Marrow Transplant Link Conexión Nacional para Transplantes de Médula Osea 20411 West 12 Mile Road, Suite 108 Southfield, MI 48076 (800) LINK-BMT (546-5268) Their motto is “A second chance at life is our first priority.” The nbmtLink operates a 24-hour, toll-free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals. Educational publications, brochures, and videos are available. Staff can respond to calls in Spanish. National Center for Complementary and Alternative Medicine (CAM) Clearinghouse (part of the National Institutes of Health NCI) Centro Nacional de Distribución de Información sobre la Medicina Alternativa y Complementaria P.O. Box 7923 Gaithersburg, MD 20898-7923 (888) 644-6226 (866) 464-3615 (TTY) Numerous resources for understanding complementary and alternative approaches for treating cancer. Includes information about Biologically Based Practices, Energy Medicine, Manipulative and Body-Based Practices, Mind-Body Medicine, dietary and herbal supplements, acupuncture, finding CAM practitioners, financial issues, clinical trials and much more. MEDLINE PLUS Database on Alternative Medicine http://www.nlm.nih.gov/medlineplus/alternativemedicine.html Search for research on complementary and alternative approaches for treating cancer. Vast searchable library of articles, latest news, law and policy, current research and lots more.
MEDLINE PLUS Database on Herbs and Supplements http://www.nlm.nih.gov/medlineplus/druginfo/herb_All.html
DIRLINE: National Library of Medicine Directory of Health Organizations & Specialized Information Services Online searchable database by medical term and list of over 300 health-related hotlines.
National Institutes of Health Office of Dietary Supplements http://dietary-supplements.info.nih.gov/ Nutrient recommendations, database and research resources, research funding opportunities, Dietary Supplement Fact Sheets, CARDS Database -- Computer Access to Research on Dietary Supplements, IBIDS Database -- International Bibliographic Information on Dietary Supplements
National Cancer Institute Office of Cancer Complementary & Alternative Medicine The Office of Cancer Complementary and Alternative Medicine (OCCAM) was established in October 1998 to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of complementary and alternative medicine (CAM).
National Cancer Institute’s CAM Clinical Trials from NCI's PDQ® Database http://www.cancer.gov/cam/clinicaltrials_pdq.html Clinical trials investigating complementary and alternative therapies from NCI's clinical trials database
National Coalition for Cancer Survivorship (NCCS) Suite 770 301–650–9127 1–877–622–7937 (1–877–NCCS–YES) The NCCS is a network of groups and individuals that offer support to cancer survivors and their loved ones. It provides information and resources on cancer support, advocacy, and quality-of-life issues. A section of the NCCS Web site and a limited selection of publications are available in Spanish. National Foundation for Cancer Research, Inc. Fundación Nacional para la Investigación del Cáncer, Inc. (800) 321-CURE (321-2873) 4600 East-West Highway, Suite 525, Bethesda, MD 20814
National Health Information Center Centro Nacional de Información sobre la Salud (800) 336-4797 P.O. Box 1133, Washington, DC 20013-1133
National Hospice and Palliative Care Organization Organización Nacional de Hospicios y Cuidados Paliativos (800) 646-6460 1700 Diagonal Road, Suite 625, Alexandria, VA 22314 703–837–1500 The NHPCO is an association of programs that provide hospice and palliative care. It is designed toincrease awareness about hospice services and to champion the rights and issues of terminally ill patients and their family members. They offer discussion groups, publications, information about how to find a hospice, and information about the financial aspects of hospice. Some Spanish-language publications are available, and staff are able to answer calls in Spanish. National Institutes of Health (NIH) Clinical Center Institutos Nacionales de la Salud Centro Clínico (800) 411-1222 (Clinical trials recruitment) (866) 411-1010 (TTY Clinical trials recruitment) 9000 Rockville Pike, Bethesda, MD 20892
National Marrow Donor Program Programa Nacional para Donantes de Médula Ósea (800) MARROW-2 (627-7692) (General Information) (800) 654-1247 (Office of Patient Advocacy) 3001 Broadway Street NE, Suite 500, Minneapolis, MN 55413 612–627–5800 The NMDP, which is funded by the Federal Government, was created to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation, peripheral blood stem cell transplant, and unrelated donor stem cell transplant, including the use of umbilical cord blood. The NMDP’s Office of Patient Advocacy assists transplant patients and their physicians through the donor search and transplant process by providing information, referrals, support, and advocacy. Oncolink http://oncolink.upenn.edu/ The Oncology Nutrition Dietetic Practice Group http://www.oncologynutrition.org/ "The Oncology Nutrition Dietetic Practice Group or ON DPG is a dietetic practice group of the American Dietetic Association or ADA." This site provides links to a database of resources for both professionals and patients, a newsletter, and recent research. Patient Advocate Foundation (PAF) The PAF provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters. The Patient Assistance Program is a subsidiary of the PAF. It provides financial assistance to patients who meet certain qualifications. The toll-free number is 1–866–512–3861. Special Note --Patient Advocate Foundation's Co-Pay Relief Program (CPR): Patient Advocate Foundation (PAF) announces the expansion of co-payment assistance funding for patients with Kidney Cancer or Sarcoma starting January 4, 2006. (They already provide financial assistance to eligible patients who are being treated for breast, lung and/or prostate cancers, and secondary issues as a result of chemotherapy treatment.) Additional information about the PAF Co-Pay Relief Program can be obtained by calling 866-512-3861 or visiting us on the web at www.copays.org or www.patientadvocate.org. R. A. Bloch Cancer Foundation, Inc. The R. A. Bloch Cancer Foundation matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. They also distribute informational materials, including a multidisciplinary list of institutions that offer second opinions. Information is available in Spanish. Vital Options® International TeleSupport® Cancer Network Suite 645, 15821 Ventura Boulevard, Encino, CA 91436–2946 818–788–5225 The mission of Vital Options is to use communications technology to reach people dealing with cancer. This organization holds a weekly syndicated call-in cancer radio talk show called “The Group Room®,” which provides a forum for patients, long-term survivors, family members, physicians, and therapists to discuss cancer issues. Listeners can participate in the show during its broadcast every Sunday from 4 p.m. to 6 p.m. Eastern time by calling the toll-free telephone number. A live Web simulcast of “The Group Room” can be heard by logging onto the Vital Options Web site. The Wellness Community® Suite 54, 919 18th Street, NW., Washington, DC 20006 202–659–9709 or 1–888–793–9355 (1–888–793–WELL) http://www.thewellnesscommunity.org The Wellness Community is a national non-profit organization that provides free psychological and emotional support to cancer patients and their families. They offer support groups facilitated by licensed therapists, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events. Well Spouse Foundation Fundación Well Spouse 63 West Main Street, Suite H, Freehold, NJ 07728 (800) 838-0879 Well Spouse is a national, non-profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse publishes a quarterly newsletter, "Mainstay" and also helps set up letter writing "round robins" to help those members who can't get out too often break the bonds of isolation. Well Spouse also works to make health care professionals and the general public aware of the great difficulties caregivers face every day. Yahoo News Cancer Research http://news.yahoo.com/fc?tmpl=fc&cid=34&in=health&cat=cancer Features timely and current news stories related to cancer research. Also links to news sources, opinions & editorials, magazine articles, video sources, and related Web sites.
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