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FEMALE CANCERS & HEALTH ISSUES American Society for Colposcopy and Cervical Pathology Sociedad Americana para la Colposcopia y Patologia Cervical (800) 787-7227 20 West Washington Street, Suite 1, Hagerstown, MD 21740
Established in 1964, the American Society for Colposcopy and Cervical Pathology (ASCCP) is the health care professionals’ organization committed to improving health through the study, prevention, diagnosis, and management of lower genital tract disorders.
AVONCares Program for Medically Underserved Women, Cancer Care Cuidado del Cancer (800) 813-HOPE (813-4673) (Línea de consejería) 275 7th Avenue, New York, NY 10001 212–712–8080 CancerCare operates the AVONCares Program for Medically Underserved Women, which provides financial assistance to low-income, under- and uninsured, underserved women throughout the country who need supportive services (transportation, child care, and home care) related to the treatment of breast and cervical cancers. CancerCare is a national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are provided by oncology social workers and are available in person, over the telephone, and through the agency’s Web site. CancerCare’s reach also extends to professionals—providing education, information, and assistance. A section of the CancerCare Web site and some publications are available in Spanish, and staff can respond to calls and e-mails in Spanish. Gilda’s Club® Worldwide Suite 1402 888–445–3248 Gilda’s Club Worldwide works with communities to start and maintain local Gilda’s Clubs, which provide social and emotional support to cancer patients, their families, and friends. Lectures, workshops, support and networking groups, special events, and children’s programs are offered. Services are available in Spanish. Gilda Radner Familial Ovarian Cancer Registry Roswell Park Cancer Institute [*] Registro Gilda Radner de Cáncer Ovárico de Familia del Instituto de Cáncer Roswell Park (800) OVARIAN (682-7426) Elm and Carlton Streets Buffalo, NY 14263 Hysterectomy Educational Resources and Services Recursos Educativos y Servicios para la Histerectomía (888) 750-HERS 422 Bryn Mawr Avenue, Bala Cynwyd, PA 19004 The HERS Foundation is an independent non-profit international women's health education organization. It provides information about hysterectomy, its adverse effects and consequences, as well as suggested alternative treatments. Jo's Trust Jo's Trust is an online information and counselling service dedicated to women with cervical cancer, their family and friends." The site offers free, confidential medical advice from experts and counselors. It also includes general information, news, events, frequently asked questions, and bulletin boards.
Living Beyond Cancer Suite 204, 10 East Athens Avenue, Ardmore, PA 19003 610–645–4567 The LBBC is an educational organization that aims to empower women living with breast cancer to live as long as possible with the best quality of life. The LBBC offers an interactive message board and information about upcoming conferences and teleconferences on its Web site. In addition, the organization has a toll-free Survivors’ Helpline, a Young Survivors’ Network for women diagnosed with breast cancer who are age 45 or younger, and outreach programs for medically underserved communities. The LBBC also offers a quarterly educational newsletter and a book for African American women living with breast cancer.
National Asian Women’s Health Organization (NAWHO) Suite 900, 250 Montgomery Street, San Francisco, CA 94104 415–989–9747 This is a virtual resource center for health issues concerning Asian-American women and their families. The NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. They have resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean. Publications on subjects such as reproductive rights, breast and cervical cancer, and tobacco control are available. National Breast Cancer Coalition Suite 1300, 1101 17th Street, NW. Washington, DC 20036 202–296–7477 or 800–622–2838 The NBCC is a breast cancer advocacy group that educates and trains individuals to become advocates who effectively influence public policies that affect breast cancer research and treatment. It also promotes breast cancer research, and works to improve access to high-quality breast cancer screening, diagnosis, and treatment for all women. National Lymphedema Network Red Nacional del Linfedema (800) 541-3259 1611 Telegraph Avenue, Suite 1111, Oakland, CA 94612 The National Lymphedema Network is a non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arm(s) and/or leg(s), and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired (primary), or when lymph vessels are damaged or lymph nodes removed (secondary). National Ovarian Cancer Coalition Coalición Nacional del Cáncer Ovárico (888) - OVARIAN 500 NE Spanish River Boulevard, Suite 8, Boca Raton, FL 33431 The NOCC raises awareness about ovarian cancer and promotes education about this disease. They have a toll-free telephone number for information, referral, support, and education about ovarian cancer. They also offer support groups, a database of gynecologic oncologists searchable by state, and educational materials. A limited selection of Spanish-language publications is available. National Women's Health Information Center Centro Nacional de Información sobre la Salud de la Mujer (800) 994-9662 8550 Arlington Boulevard., Suite 300, Fairfax, VA 22031 The National Women's Health Information Center (NWHIC) is a federally-funded information resource on women’s health offering free women’s health information on more than 800 topics through a call center and web site. By phone (in English and Spanish) or via this web site you can find:
National Women's Health Centro Nacional de Recursos (877) 986-9472 157 Broad Street, Suite 315, Red Bank, NJ 07701 The not-for-profit National Women's Health Resource Center (NWHRC) is an independent health information source for women. NWHRC develops and distributes up-to-date and objective women's health information based on the latest advances in medical research and practice. Information about cancer is available, but is more general in scope, a good place to begin the education process.
Ovarian Cancer National Alliance Suite 413 202–331–1332 The Alliance works to increase public and professional understanding of ovarian cancer and to advocate for research to determine more effective ways to diagnose, treat, and cure this disease. The Alliance distributes informational materials; sponsors an annual advocacy conference for survivors and families; advocates on the issues of cancer to the ovarian cancer community; and works with women’s groups, seniors, and health professionals to increase awareness of ovarian cancer. SHARE: Self-Help for Women with Breast or Ovarian Cancer Autoayuda para las Mujeres con Cáncer de Seno o del Ovario (866) 891-2392 1501 Broadway, Suite 704A, New York, NY 10036 SHARE is a twenty-nine year old not for profit organization offering survivor-led support to those affected by breast or ovarian cancer to ensure that no one faces breast or ovarian cancer alone. Drawing on their own experiences, cancer survivors help others address the many emotional and practical issues that arise from a cancer diagnosis. SHARE empowers individuals and communities to advocate for increased access to care, improved treatment modalities and quality of and increased research funding. SHARE’s services include hotlines in English and Spanish, with capacity in 12 other languages, support groups, wellness programs, Sisters Network, Inc. Suite 4206 713–781–0255 or 866–781–1808 Sisters Network seeks to increase local and national attention to the impact that breast cancer has in the African American community. All chapters are run by breast cancer survivors and receive volunteer assistance from community leaders and associate members. The services provided by Sisters Network include individual/group support, community education, advocacy, and research. The national headquarters serves as a resource and referral base for survivors, clinical trials, and private/government agencies. Teleconferences are held to update chapters with the latest information and share new ideas. An educational brochure designed for underserved women is available. In addition, a national African American breast cancer survivors’ newsletter is distributed to survivors, medical facilities, government agencies, organizations, and churches nationwide. Susan G. Komen Breast Cancer Foundation Fundación Susan G. Komen para el Cáncer del Seno (800) IM-AWARE (462-9273) 5005 LBJ Freeway, Suite 250, Dallas, TX 75244 The Susan G. Komen Breast Cancer Foundation’s mission is to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment. This organization operates a national toll-free breast cancer helpline (1–800–I’M AWARE) that is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials, including pamphlets, brochures, booklets, posters, videos, CD-ROMs, fact sheets, and community outreach materials, are available. Staff can respond to calls in Spanish, and some publications are available in Spanish. Y-Me National Breast Cancer Organization Organización Nacional del Cáncer del Seno Y-Me (800) 221-2141 (800) 986-9505 (Spanish) 212 West Van Buren Street, Suite 100, Chicago, IL 60607-3908 [email protected] (English) or [email protected] (Spanish) The Y-ME National Breast Cancer Organization provides information and support to anyone who has been touched by breast cancer. Y-ME serves women with breast cancer and their families through a national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs. Numerous local chapter offices are located throughout the United States. A section of the Y-ME Web site, a toll-free hotline, and publications are available in Spanish. Eyes on the Prize EyesOnThePrize.org is an online support and information website for women with gynecological cancers including: cervical, uterine, ovarian, vaginal, vulvar, and gestational. Features include extensive links and FAQ sections and an "ask the pros" service (submit questions to obstetricians, oncologists, and nurse practitioners.)
American Cancer Society’s Reach to Recovery Program This national support program is for breast cancer patients and contact is through face-to-face visits or by phone. The program helps breast cancer patients meet the physical, emotional, and cosmetic needs related to their disease and its treatment. Reach to Recovery volunteers give support for: women recently diagnosed with breast cancer
Volunteers are trained to give support and up-to-date information, including literature for spouses, children, friends, and other loved ones. Volunteers can also, when appropriate, provide breast cancer patients with a temporary breast form and information on types of permanent prostheses, as well as lists of where those items are available within a patient’s community. No products are endorsed. For more information or to locate a Reach to Recovery program in your area, visit "In My Community" on the ACS web site (http://www.cancer.org/docroot/COM/COM_0.asp) to search for resources close to your zipcode, or call them toll-free at 1-800-ACS-2345. Encore Plus at YWCA of the USA Email: [email protected] Website www.ywca.org ENCOREPlus is the YWCA’s discussion and exercise program for women who have had breast cancer surgery. It is designed to help restore physical strength and emotional well-being. A local branch of the YWCA, listed in the telephone directory, can provide more information about ENCOREPlus. MALE CANCERS & HEALTH ISSUES Testicular Cancer Information & Support This site has been developed for the sole purpose of education and support for patients with testicular cancer and their family members. Includes cancer facts, sign and symptoms, self-exams, questions, chemotherapy and radiation information, links, stories, and forums. Testicular Cancer Resource Center A resource for information and support about testicular cancer. It includes information on doing a self-exam and a glossary of testicular cancer terms as well as descriptions of various treatments."We provide accurate and timely information about these tumors and their treatment to anyone and everyone interested. We have information for patients, caregivers, family, friends, and physicians. We believe that our information and links are of the highest quality, and we are blessed with the support of some of the finest doctors in the field. What You Need to Know About Prostate Cancer http://www.cancer.gov/cancerinfo/wyntk/prostate This booklet mentions some possible causes of prostate cancer. It also describes symptoms, diagnosis, treatment, and followup care. It has information to help men with prostate cancer and their families cope with the disease. The Man to Man program helps men cope with prostate cancer by providing community-based education and support to patients and their family members. In addition, Man to Man encourages men and health care professionals to actively consider screening for prostate cancer appropriate to each man’s age and risk for the disease. A major part of the program is the self-help and/or support group. Volunteers organize free monthly meetings where speakers and participants learn about and discuss information about prostate cancer, treatment, side effects, and how to cope with the disease and its treatment. American Urological Association Foundation Suite 410, 1000 Corporate Blvd, Linthicum MD 21090 800-828-7866 or 410-689-3990 The AUA supports research; provides education to patients, the general public, and health professionals; and offers patient support services for those who have or may be at risk for a urologic disease or disorder. They provide information on urologic disease and dysfunctions, including prostate cancer treatment options, bladder health, and sexual function. They also offer prostate cancer support groups (Prostate Cancer Network). Some Spanish-language publications are available. Prostate Cancer Foundation 1250 Fourth St., Santa Monica, CA 90401 310-570-4700 or 800-757-2873 Email: [email protected] Website: http://www.prostatecancerfoundation.org/ The Prostate Cancer Foundation is a nonprofit organization that provides funding for research projects to improve methods of diagnosing and treating prostate cancer. It also offers printed resources for prostate cancer survivors and their families. The mission of the Prostate Cancer Foundation is to find a cure for prostate cancer. Prostate Cancer Research Institute 5777 W. Century Blvd., Suite 800, Los Angeles, CA 90045 Help Line is 800-641-PCRI or
310-743-2110 A great deal of treatment information and free newsletter. The Prostate Cancer Research Institute maintains a knowledgeable help line staff, all of whom have received training from the PCRI Co-founders and prostate cancer oncologists, Drs. Stephen Strum and Mark Scholz. Moreover, this experienced staff can draw upon the expertise of PCRI’s Medical Advisory Board for medical information. The helpline staff's purpose is to help the patient understand his diagnosis and his treatment options. This is done using materials from the PCRI archives and by searching for appropriate peer-reviewed medical literature. The PCRI Helpline Facilitators do not provide medical advice. Instead, their goal is to help the patient gain knowledge to promote a better communication with his medical providers in the hopes of obtaining the best possible outcomes.
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